Living with MS

YLLW | About | Living with MS
Living with MS

Dr. Payne has lived with multiple sclerosis for decades. He’s faced chronic pain, fatigue, trauma, and depression. He once gained and lost 120 pounds in the span of four years (and has kept it off since early 2002). He spent a decade supporting a wife on the verge of dying of cancer. He’s lived the challenges of chronic health conditions, both as diagnosed and caregiver.

Those experiences radically changed the course of his life. As a researcher, he did the only thing he knew to do: turned himself into a guinea pig and experimented relentlessly. But he wasn’t happy finding answers just for himself, so he interviewed hundreds, surveyed thousands, scraped 2.23 million data points from the open web, and re-analyzed over 8,000 studies on more than a hundred conditions to build practical solutions.

He discovered that most of our challenges aren’t directly from our medical symptoms, but from the practical, mental, emotional, and social fallout of managing a condition that will never go away. Medicine doesn’t have our solutions, or our conditions wouldn’t be chronic. We need quality of life care: grounded in science, driven by data, delivered with compassion, and personalized for everyone.

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